Updated: Dec 24, 2018
Kazakhstan
Organisation: Soros Foundation-Kazakhstan
Social Inclusion Program Coordinator
From the Paternalistic Policy To Social Integration: Social Inclusion For the Mentally Disabled
Description: To discuss the steps which need to be done in order to provide opportunities for children and adults with mental disabilities to live, study and work without isolation from the society in Kazakhstan.
To overview two fundamentally different approaches in social policy towards people with mental disabilities - the so-called “paternalistic” approach which was inherited by Kazakhstan and other ex-soviet countries from the USSR, and the approach based on a policy of social integration, which Kazakhstan announced after the fall of the Soviet Union.
Questions raised: What needs to be done in order to achieve policy changes? Is it possible to deinstitutionalize huge institutions? Can advocacy for inclusion prompt the loss of social benefits of people with disabilities? What other “barriers of the past” we need to overcome to reach our goals?
BIOGRAPHICAL PARAGRAPH:
Ainur Shakenova graduated with a bachelor’s degree in law from Turan University (2002) and with Master’s degree in law from Saint Louis University (2012). She has worked as a Law Reform Program Coordinator for the Soros Foundation-Kazakhstan (SFK) since 2007 with a one year gap as an Edmund Muskie Fellowship Program fellow, and supervised law and health projects. She initiated the projects on Deinstitualization/Social Inclusion of people with mental disabilities as a new concept in program activity of SFK.
She is also a lecturer at Almaty School on Advanced Training for Physicians on the issues of healthcare law and bioethics.
CZECH REPUBLIC
Klub Mosty, Fokus Praha
Abstract for The CARe Conference workshop: Club Mosty
About us:
Ctibor Lacina and Jana Pekárková are both experts by experience. Ctibor Lacina has been working as a peer worker and manager of the self-help Club Mosty within Fokus Praha since 2008. Jana Pekárková has been working as a peer worker and a deputy manager of Club Mosty since 2013.
About Club Mosty:
Ctibor and Jana will inform you in a workshop about the history, activities and “philosophy” of the self-help, low-threshold, leisure-time Club Mosty [Bridges], which is part of Fokus Praha, a major non-profit organization supporting people with the experience of mental illness in Prague and Central Bohemia. You will also see a practical demonstration of how the people in the club support one another. All the workers – team members – of Club Mosty have their own experience with mental illness and are therefore experts by experience. The team of Mosty entertain primarily people hospitalized in the nearby Mental Hospital of Bohnice (Prague’s main mental hospital) but other people with the experience of mental problems can also take part in the Club's activities. Mental illness experience is the only precondition for admission to Club Mosty programme. There are some regular and irregular activities featured in Club but as Mosty is a leisure-time programme, not a registered social service, all activities featured are voluntary and the guests are not obliged to take part in them. However, the guests are expected to participate in the programme to some extent. Examples of regular activities: Sharing how we feel, what the weekend was like, reading aloud from books, painting. Examples of irregular activities: Visiting Troja Botanical Garden, Zoological Garden, a ride on a boat along the Vltava River. Club Mosty is opened from Monday to Thursday, 1 pm to 5 pm. It was founded in 2002 by a self-help movement Zrcadlo [Mirror], who received a prestigious award from The Foundation of Good Will of Olga Havlova [the first wife of the president Vaclav Havel].
Czech Republic
Klub Mosty, Fokus Praha
Abstract for The CARe Conference workshop: Club Mosty
About us:
Ctibor Lacina and Jana Pekárková are both experts by experience. Ctibor Lacina has been working as a peer worker and manager of the self-help Club Mosty within Fokus Praha since 2008. Jana Pekárková has been working as a peer worker and a deputy manager of Club Mosty since 2013.
About Club Mosty:
Ctibor and Jana will inform you in a workshop about the history, activities and “philosophy” of the self-help, low-threshold, leisure-time Club Mosty [Bridges], which is part of Fokus Praha, a major non-profit organization supporting people with the experience of mental illness in Prague and Central Bohemia. You will also see a practical demonstration of how the people in the club support one another. All the workers – team members – of Club Mosty have their own experience with mental illness and are therefore experts by experience. The team of Mosty entertain primarily people hospitalized in the nearby Mental Hospital of Bohnice (Prague’s main mental hospital) but other people with the experience of mental problems can also take part in the Club's activities. Mental illness experience is the only precondition for admission to Club Mosty programme. There are some regular and irregular activities featured in Club but as Mosty is a leisure-time programme, not a registered social service, all activities featured are voluntary and the guests are not obliged to take part in them. However, the guests are expected to participate in the programme to some extent. Examples of regular activities: Sharing how we feel, what the weekend was like, reading aloud from books, painting. Examples of irregular activities: Visiting Troja Botanical Garden, Zoological Garden, a ride on a boat along the Vltava River. Club Mosty is opened from Monday to Thursday, 1 pm to 5 pm. It was founded in 2002 by a self-help movement Zrcadlo [Mirror], who received a prestigious award from The Foundation of Good Will of Olga Havlova [the first wife of the president Vaclav Havel].